Rights and attributions

Your rights

Your answers in the patient app belong to you. You can view, download, print, or delete them at any time, and no one else can see them unless you share them. See Privacy.

Questionnaires and criteria

See Questionnaire sources for the patient app's full instrument and translation attributions.

• RECOVER-Adult Long COVID Research Index: points and threshold from Geng et al., JAMA 2025; symptom wording from the RECOVER questionnaire reported by Thaweethai et al., JAMA 2023. The publications and RECOVER materials keep their rights.
• DePaul Symptom Questionnaire post-exertional malaise short form: Cotler et al., Diagnostics 2018, under the Creative Commons Attribution 4.0 license.
• Post-COVID-19 Functional Status scale, version 2: Klok et al., European Respiratory Journal 2020, under the Creative Commons Attribution-NonCommercial 4.0 license.
• Condition self-checks, written for this app from the National Academies 2024 Long COVID definition, the Institute of Medicine 2015 ME/CFS criteria, the 2016 revised fibromyalgia criteria, and CDC guidance on Lyme disease testing and diagnosis.
• Lupus criteria to check: the 2019 EULAR/ACR classification criteria for systemic lupus erythematosus.

Data

• NIH All of Us Research Program, Registered Tier, Curated Data Repository version 9 (aggregate counts only).
• CDC National Center for Health Statistics, Household Pulse Survey, Post-COVID Conditions (data.cdc.gov dataset gsea-w83j).
• CDC Lyme disease surveillance data, 2015 to 2019.

Acknowledgment

We gratefully acknowledge All of Us participants for their contributions, without whom this research would not have been possible. We also thank the National Institutes of Health's All of Us Research Program for making available the participant data examined in this study. The All of Us Research Program is supported by the National Institutes of Health, Office of the Director: Regional Medical Centers: 1 OT2 OD026549; 1 OT2 OD026554; 1 OT2 OD026557; 1 OT2 OD026556; 1 OT2 OD026550; 1 OT2 OD 026552; 1 OT2 OD026553; 1 OT2 OD026548; 1 OT2 OD026551; 1 OT2 OD026555; IAA #: AOD 16037; Federally Qualified Health Centers: HHSN 263201600085U; Data and Research Center: 5 U2C OD023196; Biobank: 1 U24 OD023121; The Participant Center: U24 OD023176; Participant Technology Systems Center: 1 U24 OD023163; Communications and Engagement: 3 OT2 OD023205; 3 OT2 OD023206; and Community Partners: 1 OT2 OD025277; 3 OT2 OD025315; 1 OT2 OD025337; 1 OT2 OD025276. In addition, the All of Us Research Program would not be possible without the partnership of its participants.

The All of Us name is used to cite the data source. This site is not endorsed by the All of Us Research Program or the National Institutes of Health.

Software and fonts

• IBM Plex Sans and IBM Plex Mono, under the SIL Open Font License 1.1.
• SMART on FHIR JavaScript client, under the Apache License 2.0.